Tag Archives: education

Mapping Fibromyalgia Resources

I don’t know about you, but over the years, I have come across so many websites, blogs, and articles. I either pasted the URL on word document to look it up later, or I would tell myself that if it is really important to me, I’ll come by that site again. Well, thanks to The Iffy Patient blog I have been introduced to Pearltrees; this amazing tool that allows you to collect, organize, and easily view your webfindings, photos, and notes. Plus you can share your Pearltrees with your friends on the Pearltree website, your blog, Facebook, and Twitter! Check it out and start “pearling” away 🙂

Link

Spotlight: RSDSA

Today I would like to introduce you to (or maybe you are already familiar with) RSDSA. This website has been a great reference point for me over the past couple years. RSDSA was founded in 1984, and it’s mission is to

“provide support, education, and hope to everyone affected by CRPS/RSD while we drive research to develop better treatment and a cure.”

This website has a wealth of articles on the condition, ongoing research studies, available treatments, stories from people affected with RSD/CRPS, info on support groups, and much much more. For a reasonable fee of $20 ($25 for international dues), you gain a 1-year membership of RSDSA. You will receive quarterly news letters, info on you can to get connected with others affected with CRPS/RSD, stay up-to-date with CRPS/RSD related literature and events. I highly recommend that you take browse through this website and hope you find it find it helpful as you or a loved one navigates through life with CRPS/RSD.