Tag Archives: Fibromyalgia

Gluten Causes Neuropathy (Nerve Damage)

Gluten Causes Neuropathy (Nerve Damage).

I came across this snip-it in the article about the benefits of an anti-inflammatory diet in the RSDSA newsletter. It’s been about a year since I switched to a gluten-free & dairy-free diet. I had been recently diagnosed with Gastroparesis, and one of the ways to treat it is to cutting out gluten and dairy in your diet. This new diet has definitely lessened the symptoms of GP. I knew it would probably help my Inflammatory Arthritis as well but didn’t think it would have any affect on my Fibro or RSD. You know how awesome an “Aha” moment can be. Well, I had several of them when I read this article. I remember wondering in college whether I had a gluten intolerance because after each time I ate a baked good (bread, cookies, cake, etc.), I had a headache and upset stomach. I just decided to stop eating baked goods; it would also help me lose a few pounds any way lol! Then, several family members went off gluten; I started questioning whether there could be a hereditary issue. Now I’m not saying my gluten intolerance is the sole trigger for my RSD. However, I’m sure it didn’t help and probably weakened my nervous system. While I haven’t seen any drastic changes in my pain levels, I do think this new diet has slowed down the inflammatory process going on and helped my pain become more stable. Plus my immune system is much stronger and healthier these days. I’ve heard it takes several years (like 6-10) for gluten to fully exit your system. So, I’m hoping I will see more good changes in the years to come.

So, have you made dietary changes to help your chronic pain? What has worked for you? What hasn’t? If you haven’t already, start listening to your body while you eat and afterwards. Do certain foods increase your pain? How do you feel after eating? Satisfied? Sluggish? Rejuvenated? Tired? Blah? Do your body a favor and listen to it. 🙂

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Spotlight: Yoga Studio App

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Okay, I’ll admit it. For years I was one of those people who thought yoga was just plain weird. I couldn’t understand why people were raving about a “so-called” workout, which consisted of twisting your body into painfully odd shapes while being perfectly quiet. No offense, but I thought you had to be some crazy, “new age” hippy to enjoy that “so-called” workout. Well, I was wrong, very very wrong. I started getting the hint when pretty much every chronic pain management books I’ve read highly recommend yoga as one of the best workouts for people with chronic pain. I was stubborn though. I liked my exercise routine. It kept me fit, and I usually felt pretty decent afterwards. I was convinced that it was working for me, or so I thought…

Wii Fit actually introduced me to my first yoga poses. I liked them; I felt “good” after them. But a whole workout of yoga poses? No way! Well, those hints kept coming from my pain management research. Out of curiosity, I started doing more yoga poses on the Wii Fit. They definitely loosened up my tight, sore muscles (dang Fibro!) I finally gave in and bought a beginner yoga DVD. After the first time I tried it, I remember saying I felt like I had a good workout but I was calm & relaxed too. I had no idea those words could coexist! I found myself doing yoga a couple days a week on a regular basis, and then it happened: I am doing it every day! Yep, I’ve become one of those crazy, “new age” hippies. Okay, maybe not that crazy 😉 And I feel wonderful! During my yoga sessions, I can actually sense the oxygen-rich blood rushing through my body to oxygen-deprived muscles. My muscles are more loose and less tender. I’ve seen a decrease in my overall pain levels. Plus I’m more calm 🙂

To expand my yoga workouts, I decided to do some investigating into Yoga Apps. Granted I’m still a newbie, but I wanted some variety and the ability to advance in yoga poses. I looked at a bunch of apps but finally decided on the Yoga Studio app. I absolutely love it! This app has over 280 poses, ranging from beginner to advanced. There are pre-made live sessions, with choices of level, duration, and focus. You can edit or create your own session, depending on your needs or taste. It has a crisp, clean design and is easy to navigate. I don’t know all the techy mumbo-jumbo, but both the pre-made live video sessions as well as your video creations flow seamlessly due to something called “video stitch.” It even has a calendar where you can schedule or record your workout sessions. Needless to say, I highly recommend this app. It’s definitely worth the $2.99.

I’m not saying yoga is for everyone, and it’s definitely not a “fix-all” exercise solution. Btw, I don’t just do yoga; I also have a aerobic/cardio workout based on the advice of my medical team. I encourage you to do your own research and talk with your doctor about possible exercise programs. So, here a few questions for you to ponder: What types of exercises are you presently doing? Are they physically beneficial? Do you find them enjoyable, or at least, pleasant? How do you feel during and afterwards? Tired? More stressed? Refreshed? Invigorated? Here’s to an enjoyable workout!

Mapping Fibromyalgia Resources

I don’t know about you, but over the years, I have come across so many websites, blogs, and articles. I either pasted the URL on word document to look it up later, or I would tell myself that if it is really important to me, I’ll come by that site again. Well, thanks to The Iffy Patient blog I have been introduced to Pearltrees; this amazing tool that allows you to collect, organize, and easily view your webfindings, photos, and notes. Plus you can share your Pearltrees with your friends on the Pearltree website, your blog, Facebook, and Twitter! Check it out and start “pearling” away 🙂

Welcome!

Hello friends,

Welcome to the blog “Continuing with Life!” Let me introduce myself: I’m Amy. I’m a young adult who loves the simple and beautiful in life. I enjoy life by the water. My favorite room in the house is the kitchen. I have a wonderful family and awesome friends. I’m usually singing along to music as I go about my day. And, yes, I deal with chronic pain.

So, for a quick medical overview of myself: it all began with a bad fall resulting in a severe sprain approximately 7 years ago. I was finally diagnosed of Complex Regional Pain Syndrome (CRPS – I)/Reflex Sympathetic Dystrophy Syndrome (RSD) in the spring of ’09. So, I guess one could say that I’m a classical case of CRPS/RSD but more on that later. I learned very quickly that pain conditions come in package deals. In the fall ’11, doctors told me I was also dealing with Fibromyalgia (FM). Then, in the spring ’12, I found out that I have Gastroparesis. And, finally, in the summer ’12, I was diagnosed with Inflammatory Arthritis (IA); they sub-type is unknown for now. Okay, I think we’re up to date.

What is this blog about? Yes, it is about living life with chronic pain. No, it will not be a chronicle of my personal experience. I think we all should respect each other’s personal boundaries. So I will not be relating every detail of my health care and don’t expect you to do so either. So, needless to say, this will NOT a “TMI” (i.e. a “too much information”) blog. However, I would like to share with you life lessons & helpful tips, discuss available treatments, books, and research out there, and maybe have a laugh or two along the way! I also encourage you to comment and ask questions. I certainly don’t know everything about chronic pain, and each of us has had a different experience with it. Also, I will not sugar-coat the reality of chronic pain but I will not dwell on its negatives either. With a life filled with pain, one needs hope, joy, and laughter to make it through each day.

I should be upfront about a couple things. I’m NOT a medical professional and will not pretend to be one. I encourage you to talk with your doctor and ask him/her questions about your condition(s), available treatments, etc. I’m also not a writer so bear with me 😉 I’m one of those people that would prefer a test over a paper any day haha! I can’t promise that I will post every day but hopefully a couple times a week.  Finally, I ask for your patience as I continue to construct this blog. Hopefully, it will come together over the next common months…

So, my goal and hope is that the “Continuing With Hope” blog will be an encouraging and positive read for those who are involved in the chronic pain community. We come from different backgrounds and lead different lives; our pain affects us in different ways; we each have a different experience as we work through recovery & rehabilitation. I look forward to learning from and with you in the future!