Tag Archives: Treatments

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Spotlight: RSDSA

Today I would like to introduce you to (or maybe you are already familiar with) RSDSA. This website has been a great reference point for me over the past couple years. RSDSA was founded in 1984, and it’s mission is to

“provide support, education, and hope to everyone affected by CRPS/RSD while we drive research to develop better treatment and a cure.”

This website has a wealth of articles on the condition, ongoing research studies, available treatments, stories from people affected with RSD/CRPS, info on support groups, and much much more. For a reasonable fee of $20 ($25 for international dues), you gain a 1-year membership of RSDSA. You will receive quarterly news letters, info on you can to get connected with others affected with CRPS/RSD, stay up-to-date with CRPS/RSD related literature and events. I highly recommend that you take browse through this website and hope you find it find it helpful as you or a loved one navigates through life with CRPS/RSD.

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Welcome!

Hello friends,

Welcome to the blog “Continuing with Life!” Let me introduce myself: I’m Amy. I’m a young adult who loves the simple and beautiful in life. I enjoy life by the water. My favorite room in the house is the kitchen. I have a wonderful family and awesome friends. I’m usually singing along to music as I go about my day. And, yes, I deal with chronic pain.

So, for a quick medical overview of myself: it all began with a bad fall resulting in a severe sprain approximately 7 years ago. I was finally diagnosed of Complex Regional Pain Syndrome (CRPS – I)/Reflex Sympathetic Dystrophy Syndrome (RSD) in the spring of ’09. So, I guess one could say that I’m a classical case of CRPS/RSD but more on that later. I learned very quickly that pain conditions come in package deals. In the fall ’11, doctors told me I was also dealing with Fibromyalgia (FM). Then, in the spring ’12, I found out that I have Gastroparesis. And, finally, in the summer ’12, I was diagnosed with Inflammatory Arthritis (IA); they sub-type is unknown for now. Okay, I think we’re up to date.

What is this blog about? Yes, it is about living life with chronic pain. No, it will not be a chronicle of my personal experience. I think we all should respect each other’s personal boundaries. So I will not be relating every detail of my health care and don’t expect you to do so either. So, needless to say, this will NOT a “TMI” (i.e. a “too much information”) blog. However, I would like to share with you life lessons & helpful tips, discuss available treatments, books, and research out there, and maybe have a laugh or two along the way! I also encourage you to comment and ask questions. I certainly don’t know everything about chronic pain, and each of us has had a different experience with it. Also, I will not sugar-coat the reality of chronic pain but I will not dwell on its negatives either. With a life filled with pain, one needs hope, joy, and laughter to make it through each day.

I should be upfront about a couple things. I’m NOT a medical professional and will not pretend to be one. I encourage you to talk with your doctor and ask him/her questions about your condition(s), available treatments, etc. I’m also not a writer so bear with me 😉 I’m one of those people that would prefer a test over a paper any day haha! I can’t promise that I will post every day but hopefully a couple times a week.  Finally, I ask for your patience as I continue to construct this blog. Hopefully, it will come together over the next common months…

So, my goal and hope is that the “Continuing With Hope” blog will be an encouraging and positive read for those who are involved in the chronic pain community. We come from different backgrounds and lead different lives; our pain affects us in different ways; we each have a different experience as we work through recovery & rehabilitation. I look forward to learning from and with you in the future!